When living with a rare disease, it is comforting to know that you are not alone. Each person’s journey with cicatricial alopecia is unique to them.
Learn, be inspired, and get to know others through the connections at CARF.

Share your story

Nancy G.
LPP
A Patient’s Perspective: Half Empty or Half Full?


Chris J.
LPP/FFA
Sometimes you need to take your own advice…my journey so far and lessons learned.


Sista D.
FFA/LPP
Living MY Life

Sally W.
FFA/LPP
My Hair Loss Journey

Teresa A.
Pseudopelade Scarring Alopecia
My New Normal

Angela P.
CCCA/LPP
Counting Myself Lucky


Betty T.
LPP
An Interview by Laurence Spector

Kris W.
FFA
A Journey with FFA

Jen R.
LPP
A diagnosis both oral and follicle


Aloma L.
CCCA
My path from discovery to diagnosis of cicatricial alopecia was long and circuitous


Anonymous
DL
I was diagnosed with possible discoid lupus in 1978 at age 28

Adrienne B.
FFA/LPP
My Story. Finding the Answers.

Sandra P.
FFA/LPP
I don’t feel sorry to see my scalp as it is my soul what makes me shine.

Jacqui S.
CCCA
Then she lived! My journey with CCCA

Tina C.
LLP
My LPP Journey

Mary B.
FFA
The Perfect Storm
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